Go Gray in May Initiative

Go Gray in May Initiative

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KRF’s Hope and Kindness Initiative 2020 Scrapbook
Thanks to all who participated.

KRF HOPE AND KINDNESS INITIATIVE – GO GRAY IN MAY

MAY IS BRAIN TUMOR AWARENESS MONTH

#KRFGOGRAYINMAY #KRFHopeandkindness

In 2020 we decided to do something new during May-Brain Tumor Awareness Month. We asked people to color in a poster designed by Ella Tindall and add an inspiring note at the top. We asked people to pose with their drawings and lawn signs showing their support. We put them together in this virtual scrapbook to encourage the kids in the Children’s Hospital of Philadelphia (CHOP). Thank you to all who participated. Your ongoing support if KRF efforts is immeasurable.

MAY IS BRAIN TUMOR AWARENESS MONTH

#GOGRAYINMAY

In 2009 The Kortney Rose foundation (KRF) with the help of local NJ legislators drafted and passed a resolution that annually calls on the sitting Governor of New Jersey to declare, by proclamation, that May be recognized as Brain Tumor Awareness Month in the State of New Jersey. To see this proclamation, click here.

In 2020 KRF was also responsible for getting a proclamation that names MAY 17th as DIPG Awareness Day. (Diffuse Intrinsic Pontine Glioma is the tumor Kortney died of, as well as roughly 400 kids annually) To see this proclamation, click here.

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Announcements will be forthcoming about Kortney’s Challenge 2020. Stay Tuned.

Thanks, as always, for your continued support of The Kortney Rose Foundation. We wish you and your loved one’s safety, health and all the best as we face the months ahead together as a community.

MORE ABOUT BRAIN TUMOR AWARENESS MONTH

May is Brain Tumor Awareness Month and the awareness color is Gray (signifying “gray matter” in the brain).

  • Approximately 300,000 children and teens around the globe are diagnosed with cancer each year, with brain tumors among the most prevalent.
  • Brain and Central Nervous System (CNS) tumors are the most prevalent form of pediatric cancer in children under age 19
  • Brain Tumors are the #1 cause of death by disease in children adolescents in the U.S.
  • Cancer is the second most common cause of death among children ages 1 to 14 years in the US, after accidents.
  • 1 in every 285 children in the U.S. will be diagnosed with cancer.
  • Nearly 4,000 brain tumor diagnoses in 2018 will be in children under the age of 14.
  • An additional 12,290 new cases of brain and Central Nervous System (CNS) tumors will be found in Adolescents and Young Adults (AYA) by the end of 2019.
  • ONLY 4% of all federal funding is devoted to childhood cancer research.
  • Due to underfunding and lack of public awareness there’s been a low amount of progress in treatment over the past several decades.
  • In the past 30 years, only four FDA-approved drugs – and one medical device – have been developed to treat all brain tumors.
  • There has never been a drug developed and approved to specifically treat malignant brain tumors in children.