Group CHOP Visit June 6, 2018 – Jocelyn Rineer

We asked a couple of our attendees to write about their experience attending a group visit with The Kortney Rose Foundation (KRF) to the Children’s Hospital of Philadelphia (CHOP) to learn more about the research KRF supports including the Children’s Brain Tumor Tissue Consortium (CBTTC) and a tour of the bio repository.   “There were…

Fly Me To The Moon – Joe Baber

Our friend, Joe Baber, from The Nicholas Conor Institute wrote a great blog discussing Joe Biden’s initiative to put an end to cancer.  The initiative is called “Cancer Moonshot” and was mentioned in President Obama’s latest State of The Union Address.  Click the link below to read his blog and check back for any more…

Four-Square Clobbers Cancer

Five-year relative survival rates describe the percentage of patients with cancer that are alive five years after their disease is diagnosed. Use of 5-year survival statistics is more useful in aggressive cancers that have a shorter life expectancy following diagnosis (such as lung or pancreatic cancer) and less useful in cases with a long life expectancy such…

Advocacy and Year End Victories

While I don’t have as much time to work on advocacy issues as I’d like I do try to help out when I can. Like many others involved in the brain tumor community, I work on the sidelines as an advocate for several other foundations that work to get legislation passed specific to pediatric brain…

Why do I do what I do?

I’ve made it pretty clear that I started The Kortney Rose Foundation to raise money in Kortney’s memory to help other kids with brain tumors by funding lifesaving research. Hopefully in time our donations will lead to new treatments that might have fewer side effects than what they are currently using for these kids. While…

Happy New Year

Happy New Year to all a little late, but with the same heartfelt sincerity. In years past the holidays for me meant trying not to miss Kortney too much and just getting through it with the best attitude I could. Remarkably, this past Christmas season was the best I’ve had mentally since losing Kortney. I…