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KRF Corner Newsletter | Winter 2020 – 2021

READ Check out the KRF Corner Newsletter and see what we have been up to....
25 March, 2021
What Researchers are Excited about for 2021

WATCH VIDEO: We asked researchers what they were most excited about in pediatric brain tumor research....
25 March, 2021
Go Gray in May Initiative

May is Brain Tumor Awareness Month. Help spread the word with your free “Go Gray in May Awareness” Kit....
21 March, 2021
VIRTUAL Kortney’s Challenge 2021

SAVE THE DATE: Registration for the VIRTUAL Kortney's Challenge opens March 29, 2021....
01 June, 2020
Record Breaking Turning Point Fundraiser!

Over $106,000 raised! Read the Press Release....
16 March, 2020
New Monthly Giving Club

Introducing Kortney’s Rose Garden Monthly Giving Club....
22 April, 2019
Announcement: Dr. Cassie Kline

Thanks to your support, Dr. Cassie Kline has been named as the Inaugural KRF Clinical Researcher....
21 April, 2019

Latest from Instagram

thekortneyrosefoundation

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Jun 5

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Thank you John!! Congratulations on finishing your 30 Mile Paddle today from Oceanport to the tip of Manhattan. Unbelievable! AND you doubled the amount you set out to raise for KRF to support research for pediatric brain tumors!! #amazing #paddleboarding #paddleboard #paddleboardingadventures #paddlelife #helpingothers @servpro_elb @childrensbraintumornetwork

thekortneyrosefoundation

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Jun 3

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Only THREE days left!!! Help KRF by supporting John's fundraising goal and hit $9000! John will be stand up paddling 30 miles from Oceanport, NJ to New York City this Saturday, June 5th. AND he will match donations up to $1000 from today until Saturday.
For more information, visit the link in our bio and check out RIDE THE TIDE under events.
#pediatric #brain #tumor #cancer #research #fundraiser #donate #wewontstop
@servpro_elb

thekortneyrosefoundation

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May 25

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RIDE THE TIDE - On June 5th, John Majeski, owner of SERVPRO of Eatontown/Long Branch and SERVPRO of Hackensack/Little Ferry a NJ businessman, will be paddling 30 miles from NJ to NY in efforts to raise money for KRF. You may also follow his challenging adventure and support his efforts here, https://bit.ly/2TcHWrD (may require copy/paste into new URL). #pediatric #brain #tumor #cancer #research #collaborate #donate #sup #wewontstop
@servpro_elb

thekortneyrosefoundation

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May 20

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We were honored at today's Children 's Brain Tumor Network Investigator's Meeting. It was truly an honor and we are very happy to have been part of this journey together. Let's continue the great work. Thank you, CBTN #pediatric #braintumors #wewontstop #research #cbtn
@childrensbraintumornetwork

thekortneyrosefoundation

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May 19

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[REPOST - One week left! Survey closes May 26, 2021]

The Pediatric Pacific Neuro-oncology Consortium (PNOC) and Children’s Brain Tumor Network (CBTN) are conducting a survey to assess overall management of patients with primary and recurrent craniopharyngioma, which is a type of brain tumor. Please help our doctors and researchers identify the most immediate needs and quality of life impacts for patients and families to help inform on future clinical trial development by completing this 15-20 minute anonymous survey (ends 5/26/21).

Click (or copy/paste) Survey Link:
https://redcap.chop.edu/surveys/?s=7WMYFC9Y3P

Who should take the survey?
Someone 18 years or older, and can include adult survivors, adult patients, or adult family members of patients that are minors.

If there are any questions or concerns, please contact Dr. Cassie Kline (klinec@chop.edu) or Dr. Fatema Malbari (fatema.malbari@bcm.edu).

thekortneyrosefoundation

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May 18

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***REGISTER TODAY*** Our annual Kortney's Challenge 2 mile FUN Run/Walk is happening the weekend of July 30 - August 1. There is time to sign up so gather your family and friends, from anywhere, for this virtual event.

Our goal is to get participants from each state in the US and as many countries. TOGETHER BUT APART, we take steps to Help Get Brain Tumors Off Kids’ Minds. #kortneyschallenge #virtual #pediatric #brain #tumor #research @cbtn

Registration link >> https://bit.ly/3hwslNS

thekortneyrosefoundation

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May 12

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This fundraiser is a WIN WIN!

Stop by @simones_jewelry to donate $25 to Kortney Rose Foundation and get a $25 Simone's Jewelry gift certificate to use on a return visit.

*Gift certificate can be redeemed between June 1 - November 1, 2021. Donations to KRF will be matched with Simone's gift certificate up to $100.

#KRFGOGRAYINMAY #gograyinmay #mayisbraintumorawarenessmonth #simonesjewelrycelebrates30years #simonesjewelryfundraiser

thekortneyrosefoundation

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May 11

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Here is a throwback to last year's virtual coloring book event we did for the kids at CHOP. It was our Hope & Kindness initiative and this fabulous photo is credited to Kortney's sister, Kasey 💜. #KRFGOGRAYINMAY #gograyinmay #mayisbraintumorawarenessmonth

thekortneyrosefoundation

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May 6

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Remember Mom and please remember to use Smile.Amazon to benefit The Kortney Rose Foundation. No extra money out of your pocket, Amazon Smile donates a portion of every purchase when you go through Smile.Amazon.com, select KRF as your charity to benefit. Same products as regular Amazon. It’s a Win/Win!

thekortneyrosefoundation

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May 4

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We are out of Go Gray in May kits! Thank you for your interest in helping to raise awareness that May is Brain Tumor Awareness Month.

Thank to the generosity of our Awareness Sponsor, Ocean First Foundation, we were able to offer the kits free of charge.

@oceanfirstfoundation
#mayisbraintumorawarenessmonth
#gograyinmay

thekortneyrosefoundation

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May 1

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It's the 1st of May and so it begins. Go gray in May because May is brain tumor awareness month. In honor of Kortney and to all the angels and warriors of this deadly disease, please help to spread the word and support the cause. #gograyinmay #braincancerawareness #braincancerawarenessmonth #braintumorawareness #braincancersucks

thekortneyrosefoundation

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Apr 30

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The Pediatric Pacific Neuro-oncology Consortium (PNOC) and Children’s Brain Tumor Network (CBTN) are conducting a survey to assess overall management of patients with primary and recurrent craniopharyngioma, which is a type of brain tumor. Please help our doctors and researchers identify the most immediate needs and quality of life impacts for patients and families to help inform on future clinical trial development by completing this 15-20 minute anonymous survey (ends 5/26/21).

Click (or copy/paste) Survey Link:
https://redcap.chop.edu/surveys/?s=7WMYFC9Y3P

Who should take the survey?
Someone 18 years or older, and can include adult survivors, adult patients, or adult family members of patients that are minors.

If there are any questions or concerns, please contact Dr. Cassie Kline (klinec@chop.edu) or Dr. Fatema Malbari (fatema.malbari@bcm.edu).

thekortneyrosefoundation

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Apr 26

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Results are here but the challenge can keep on going! Thanks to our supporters for your participation and donation to The Kortney Rose Foundation via our Work from Home Savings Challenge. Together, we will continue to Help Get Brain Tumors Off Kids' Minds! #WFHSavingsChallenge #KRF #kidsmatter #support #childhood #brain #cancer #tumor #pediatrics #research #wewontstop

thekortneyrosefoundation

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Mar 30

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Registration now open. Virtual #kortneyschallenge 2 mile FUN Run/Walk. Help us get participants from each state in the US and many countries. Brain tumors are diagnosed in kids all over the world. We need to collaborate to support the researchers working together to Help Get Brain Tumors Off Kids’ Minds. #pediatric #brain #tumor #research @cbtn

thekortneyrosefoundation

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Mar 15

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Thank you for supporting our Work from Home Savings Challenge. Let’s keep it going! Here is some additional information on how our collective work from home savings can help make a difference. #WFHSavingsChallenge #KRF #kidsmatter #support #childhood #brain #cancer #tumor #pediatrics #research #donate #wewontstop #CBTN

thekortneyrosefoundation

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Mar 13

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#WFHSavingsChallenge is a fun way to fund research for the healthcare workers still commuting to children’s hospitals because pediatric cancer NEVER TAKES A DAY OFF. The timing coincides with today’s one-year anniversary when COVID-19 was declared a national emergency, and work-from-home became a reality for many. We challenge you to donate a portion of your savings to KRF (link in bio) and help fight childhood brain cancer. Supporters are asked to share a photo/video of their best work from home scenario. We hope you will follow us and join our cause. #WFHSavingsChallenge #KRF #kidsmatter #support #childhood #brain #cancer #tumor #pediatrics #research #donate #wewontstop

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