Mike and Melody Minervini joined us on our visit to CHOP. They have been substantial and loyal supporters of The Kortney Rose Foundation since inception. We asked for their feedback after visiting CHOP and the Children’s Brain Tumor Tissue Consortium (CBTTC).
Mike’s blog post:
“When my wife and I moved into Oceanport in 2005, we were invited to a fund raiser for a little girl named Kortney! We were inspired by her story and wanted to be a part of what the community was doing! After Kortney had spread her wings to fly and the Kortney Rose Foundation went into full swing, we desired to lend a helping hand. We loved the mission of raising awareness and funds for pediatric brain tumors. We also loved that the organization that we were helping with this awesome committee was local! Each year there was an opportunity to visit CHOP, but our schedules simply did not permit us to attend.
Fast forward to June 6, 2018! We joined Kristen and Rich Gillette and a contingent from the Kortney Rose Foundation and were finally able to visit CHOP! What a wonderful and eye opening experience it was! We met with the doctors and researchers who are leading the fight for pediatric brain tumors. We toured the facilities, learned about what was being done and where the funds were going that were being donated each year from the KRF. We were impressed by the collaboration on behalf of Dr. Adam Resnick and his team at CHOP as well as hospitals around the US and the WORLD in the effort to find a cure for pediatric brain tumors! We were thrilled to learn that “Cavatica”, a collaborative web based effort from these hospitals, was built and is being used as a model all over the world to share data and research.
It is quite evident that the Kortney Rose Foundation is helping to lead the way to advance efforts for a cure! The excitement and motion is not only present, but building like a freight train as these great doctors and researchers are working tirelessly to make pediatric brain tumors a thing of the past! Thanks to Kristen, Rich and the entire Kortney Rose Foundation for all that you do and for your leadership!!”