LISTEN HERE Preview the “May is Brain Tumor Awareness Month” Audio PSA
Your donation of $50 will fund one hour of research.
A gift of $500 will fund one day of research.
A gift of $2,500 will fund a week of research.
A generous gift of $10,000 will pay for an entire month of research.
WHY WE SUPPORT CHOP
More than 95% of every dollar donated to KRF goes directly to the life-saving research at The Children’s Hospital of Philadelphia (CHOP), specifically their Large-Scale Genome Project and the new world-class Children’s Brain Tumor Tissue Consortium (CBTTC.org).
KRF has selected CHOP as its primary beneficiary for several reasons. For starters, it is consistently ranked best overall children’s hospital and children’s oncology hospital in the nation by both U.S. News & World Report and Parents magazines. It is also the hospital where Kortney received exceptional treatment from talented and compassionate doctors and staff.
Most notably, CHOP and its recently established Childhood Brain Tumor Tissue Consortium (CBTTC) are committed to research. The CBTTC is completely funded by donor support with 100% of all donations going straight to the CBTTC’s research, and funds can be directed by interest. Like the Kortney Rose Foundation, the CBTTC strongly believes that working together is the key to overcoming the devastating cancers of childhood, which was the impetus behind the creation of this collaborative, multi-institute research program dedicated to the study of childhood brain tumors.
The Children’s Brain Tumor Tissue Consortium (CBTTC) is a collaborative, multi-institute research program dedicated to the study of childhood brain tumors. The CBTTC is committed to improving outcomes for children with brain tumors by supporting research that will lead to new treatments and diagnostic tools. The CBTTC has made great strides toward increasing worldwide collaboration by sharing efforts to advance informatics, building a large store of brain tumor tissue in a state-of-the-art biorepository, and bringing together the leading experts in the field. The long-term goal of the CBTTC is to stimulate tissue-based research and increase worldwide access to the molecular analysis of large numbers of tumor specimens, so that new diagnostic tests and treatments can be developed faster.
Quote from the Principal Investigator for the Children’s Brain Tumor Tissue Consortium at CHOP.
“The past decade has witnessed the emergence of entirely new technologies in biomedicine that provide for the first time the opportunity for new precision medicine approaches to treat cancer. However, applying these discoveries towards cures for children with brain tumors faces numerous challenges ranging from limited funding for research to the need for increased advocacy and education of patients and families. The KRF, through an unparalleled grass roots effort, has served to uniquely empower the discovery of new precision medicine approaches for kids with brain tumors through their support of the Children’s Brain Tumor Tissue Consortium, a collaborative network of pediatric hospitals dedicated to open access, data-driven discoveries in pediatric cancer.”
Childhood Brain Tumors
- Brain tumors are the most common form of solid tumor and the leading cause of death from solid tumors in children (SEER 1975-1999)
- They account for about 1 out of 5 childhood cancers. – American Cancer Society
- More than 4,300 central nervous system tumors are diagnosed each year in children and teens. – Central Brain Tumor Registry of the United States (CBTRUS)
- Every day nine children in the U.S. are diagnosed with a brain tumor. – Pediatric Brain Tumor Foundation
- Two-thirds of children treated for childhood cancer will suffer long-term effects from treatment including loss of hearing and sight, heart disease, secondary cancers, learning disabilities, infertility and more- St. Baldrick’s Foundation
Members of the CBTTC
The CBTTC includes leading pediatric brain cancer clinicians, researchers and institutions, including The Children’s Hospital of Philadelphia(CHOP), Children’s Hospital of Pittsburgh of UPMC, Ann& Robert H. Lurie Children’s Hospital of Chicago, Seattle Children’s Hospital and Meyer Children’s Hospital in Florence Italy. The CBTTC operations center, including the state-of- the-art biorepository where tissue is housed, is at CHOP. Plans are to increase the number of primary member sites to 6 in additional to having each primary site launch satellite member sites to bring the CBTTC to increased numbers of hospitals.
Work of the CBTTC
The Children’s Brain Tumor Tissue Consortium (CBTTC) is a collaborative, multi-institute research program dedicated to the study of childhood brain tumors.
- Collect high-quality biospecimens from all brain tumor types and annotate with long term clinical & genomic data
- Create an open access specimen and data informatics system with real-time access
- Create an open access genomic analysis environment for worldwide collaboration
- Share materials, data and results to simulate and accelerate research
How You Can Help the CBTTC
The CBTTC is completely funded by donor support. 100% of all donations go straight to the CBTTC and can be directed by interest. Please contact us for how you can partner with the CBTTC. Dan Agoglia at 267-426-6461, email@example.com Jena V. Lilly at 267-425-3137, firstname.lastname@example.org
Current opportunities for support include:
- Sequence and Analysis of Specimens
- Collection of Clinical Data & Specimens
- Tumor Modeling
- Specimen Banking
- Specimen Shipping
- Specimen Kits
- Informatics System Development
You can find the full PDF version of the sheet used by CHOP here.