Kelli O’Brien is the first Social Media/Marketing intern KRF has had and she is with us this summer of 2019. Kelli accompanied us on our trip to CHOP/CBTTC.
Here is her blog post with her reaction to that trip:
Being an intern for the Kortney Rose Foundation (KRF) for only a couple months has been an eye-opening experience. Before I started my internship, I had very little knowledge about pediatric brain tumors and cancers. Meeting Kristen and learning about the Kortney Rose Foundation tells an inspiring story about loss but also about a better future for children who suffer from these life-threatening diseases. The Gillette family started this foundation, to ultimately fund research to find a cure pediatric brain tumors. The Kortney Rose foundation is one of the first foundation supporters of the CBTTC, Children’s Brain Tumor Tissue Consortium. Since it began, KRF has worked very closely with the Children’s Hospital of Philadelphia (CHOP). I was one of 15 supporters who got to spend the day at CHOP to learn more about how small foundations, especially The Kortney Rose Foundation, helps to do amazing things, not just at CHOP but all over the world. We got to see the beautiful hospital and to sit down and listen to Dr. Resnick who is one of the Scientific Director of the CBTTC. He told us in detail how much the CBTTC has grown, form one institution to now 17 institutions, globally. It was inspiring and motivating hearing how far research and funding has come in just over a decade, and it will only continue to grow from here. It really shows how far someone can go and even a small foundation can do when they work hard and are passionate to help others. It is very emotional for me to hear that only 4 percent of funding goes toward pediatric cancer research. Even though brain tumors are the #1 cause of death by disease in children they only receive a small portion of that 4% allotment.
Children are the future. They deserve to live their lives and know they have a future ahead of them, and not to hear that there is nothing doctors can do because so little research has been done. That is a poor excuse and no family should have to be told this. The CBTTC started with funding from small foundations. That they have stepped up to fight for these kids, to me, is one of the most inspiring stories. I will always support foundations who fight for what is right, and like the Kortney Rose Foundation who genuinely care and want to see a change in the world for the better.